When I was diagnosed with MS, I somehow knew, that I had to keep "going" (okay.... I was sitting in a wheel chair, when the doctors gave me the diagnosis....) if I wanted a normal life.. Still to this day, I would say "Define normal", and everytime you ask, it produce an answer similar to the previous ones - and yet never identical.
MS is the same for most of us with that diagnosis - we have the diagnosis in common, but always individual variations of the disease.
My immediate thought was, that I needed to figure out, what I was able to do... but could not dismiss things without at least several attempts to accomplish something. It took tennacity, but I regained the ability to walk and later on also running.... and I have given myself options, if I should loose some of those abilities again...if I can no longer run, I might be able to walk... if that should suddenly be impossible - then I need a wheelchair, and I will immediately sign up for whellchair races etc.
I had to learn to have patience (actually still working with that - LOL!) and keep trying to look for solutions possibilities. Friends were amazed and supportive and yet still somewhat curiuos about how I am approaching a lot of things/obstacles etc. Just how do you do that?
At a class, "Who Moved My Cheese?" by Dr. Spencer Johnson was on the syllable.... and there was the answer.... Soon after I bought ten copies (!!) and gave them to my friends asking them to read it with an open mind. What was I up to? But I could tell excactly when they had finished reading the book 'cause all of them phoned me immediately after saying "OK now I get it" - and one of them even gave me the parody "Who Moved My Christmas Tree?" the following X-mas knowing my love for that time of the year.
Lately (within the past year) I found a blog, where another MSer explains the worries, thoughts etc. about the MS in Haiku style - I know that my friends are once in a while reading that blog, as it reflects a lot of the stuff on my mind.
How do you explain "it" ?
1 comment:
Thank you, Andaje, for mentioning my blog. It is always amazing to me to think that others are reading my poems and finding them worthy of their attention. I write poems about what I know, feel, and/or observe and send them out. That they land on receptive ground feels miraculous.
Judy
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